My Child Has... Article

My Child Has...


Down Syndrome: Resource List

Books for Children

Ages 3 to 8

  • 1 2 3 for You and Me by Margaret Girnis Albert Whitman, 2001
  • Are There Stripes in Heaven? by Lee Klein, Pam Mauseth (illustrator) Paulist Press, 1994
  • Be Good to Eddie Lee by Virginia Fleming, Floyd Cooper (illustrator) Philomel Books, 1993
  • Big Brother Dustin by Alden R. Carter, Dan Young (photographer), Carol Carter (illustrator) Albert Whitman & Co, 1997
  • Cookie by Linda C. Kneeland Jason & Nordic Pub, 1999
  • Dustin's Big School Day by Alden R. Carter Albert Whitman & Co, 1999
  • Russ and the Firehouse by Janet Rickert Woodbine House, 2000
  • Thumbs Up, Rico! by Maria Testa, Diane Paterson (illustrator) A. Whitman, 1994
  • Veronica's First Year by Jean Sasso Rheingrover, Kay Life (illustrator) A. Whitman, 1996 (for sibling)

Ages 8 to 12

  • Down Syndrome by Kristina Routh Heinemann Library, 2004
  • Everything You Need to Know About Down Syndrome by Mary Bowman-Kruhm Rosen, 1999
  • I Can, Can You? by Marjoire Pitzer Woodbine House, 2004
  • Let's Talk About Down Syndrome Melanie Gordon PowerKids Press, 1999
  • Living With Down Syndrome by Jenny Bryan Raintree-Steck-Vaugh, 1999
  • Luke Has Down Syndrome by Jillian Powell Chelsea Clubhouse, 2005
  • Radiance Descending by Paula Fox DK Ink, 1997 (for sibling)

Young Adult

  • Let's Talk About Down Syndrome by Melanie Apel Gordon Rosen, 1999

Books for Adults

  • Adventures in the Mainstream: Coming of Age with Down Syndrome by Greg Palmer Woodbine House, 2005
  • A Parent's Guide to Down Syndrome: Toward a Brighter Future, rev. ed. Siegfried M. Pueschel Paul H. Brookes Pub. Co., 2001
  • Adolescents with Down Syndrome: Toward a More Fulfilling Life by Siegfried Pueschel Paul H. Brookes Pub., 1997
  • Babies with Down Syndrome: A New Parents' Guide by Karen Stray-Gundersen Woodbine House, 2008
  • Communication Skills in Children with Down Syndrome: A Guide for Parents by Libby Kumin Woodbine House, 1994
  • Coping with Down's Syndrome by Fiona Marshall Sheldon Press, 2005
  • Down's Syndrome - Children Growing Up by J. H. Carr Cambridge University Press, 1995
  • Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles by Joan Medlen Woodbine House, 2002
  • Down Syndrome Transition Handbook: Charting Your Child’s Course to Adulthood by Jo Ann Simons Woodbine House, 2010
  • Down Syndrome: Successful Parenting of Children with Down Syndrome by John Unruh Fern Ridge Press, 1994
  • Early Communication Skills in Children with Down Syndrome by Libby Kumin Woodbine House, 2003
  • Fine Motor Skills for Children with Down Syndrome: a Guide for Parents and Professionals 2nd ed by Maryanne Bruni Woodbine House, 2006
  • Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals by Patricia C. Winders Woodbine House, 1997
  • Improving the Communication of People with Down Syndrome Jon Miller Paul H. Brookes Pub., 1999
  • Teaching Children With Down Syndrome About Their Bodies, Boundaries, And Sexuality: A Guide For Parents And Professionals by Terri Couwenhoven Woodbine House, 2007

Other Resources

National Down Syndrome Society
666 Broadway
8th Floor
New York, NY 10012-2317
Web site:
Information pamphlets and clinical care booklets educational videos referrals on an 800 hotline a free information packet is available.

Compiled by Catherine Smith, MLS, medical librarian at the Family Health Library, The Children's Hospital, Denver, CO.
Published by RelayHealth.
Last modified: 2010-06-04
Last reviewed: 2010-06-04

This content is reviewed periodically and is subject to change as new health information becomes available. The information is intended to inform and educate and is not a replacement for medical evaluation, advice, diagnosis or treatment by a health care professional.

Copyright © 1996-2016 The Children's Mercy Hospital