Bone Marrow Transplantation Research

Families coming to Children's Mercy Hospitals and Clinics for their child's stem cell transplant are often asked to consider participation in currently active clinical research trials. Clinical trials are an important way for doctors and other health care providers to learn how best to care for the children that they treat. Through protocols provided by such nationally recognized groups as the Children's Oncology Group , Pediatric Blood and Marrow Transplant Consortium and the Blood and Marrow Transplant Clinical Trials Network, children can receive cutting edge therapy developed by experts in the field. Learn about clinical trials at Children's Mercy.

The transplant team understands that it is not only the physical health that is impacted by the transplant process. Because of that, families may also be asked to consider participation on research exploring aspects of the transplant journey such as family dynamics, teenage resilience, and the impact of a family member being a donor. 

Children's Mercy also participates in a number of transplant registries that are available to researchers. When a family gives permission to participate in a transplant research registry, patient data is included in a database with other people who have had transplants. The information is forwarded without names or other identifiable information, but it does have information about why the transplant is done and how the person did. This information is then available to researchers who may want to study different kinds of diseases or transplant.

Before anyone agrees to participate in any kind of research, they should have a good understanding about what the research is and what will happen. Agreement to participate in any research should only happen when all questions have been answered.

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