Families coming to Children's Mercy Hospitals and
Clinics for their child's stem cell transplant are often asked
to consider participation in currently active clinical research
trials. Clinical trials are an important way for doctors and
other health care providers to learn how best to care for the
children that they treat. Through protocols provided by such
nationally recognized groups as the Children's Oncology Group ,
Pediatric Blood and Marrow
Transplant Consortium and
the Blood and Marrow Transplant Clinical Trials Network,
children can receive cutting edge therapy developed by experts in
the field. Learn about clinical trials at Children's Mercy.
The transplant team understands that it is not only the physical
health that is impacted by the transplant process. Because of
that, families may also be asked to consider participation on
research exploring aspects of the transplant journey such as family
dynamics, teenage resilience, and the impact of a family member
being a donor.
Children's Mercy also participates in a number of transplant
registries that are available to researchers. When a family
gives permission to participate in a transplant research registry,
patient data is included in a database with other people who have
had transplants. The information is forwarded without names or
other identifiable information, but it does have information about
why the transplant is done and how the person did. This
information is then available to researchers who may want to study
different kinds of diseases or transplant.
Before anyone agrees to participate in any kind of research,
they should have a good understanding about what the research is
and what will happen. Agreement to participate in any research
should only happen when all questions have been answered.